YouTuber Adalia Rose Williams, who had ‘Benjamin Button disease’, has died at the age of 15.
The Texas teenager was diagnosed with Hutchinson-Gilford progeria syndrome when she was just three months old, her mother Natalia Pallante said. It’s a rare, progressive genetic disorder, affecting fewer than 500 children across the world, which causes children to age rapidly within their early years.
While some live on into their adult years, the average life expectancy of a child with the condition is around 13 years, with heart problems and strokes the most common causes of death.
Williams was ‘set free from this world’ on Wednesday, January 12, according to a statement posted to her social media accounts.
‘She came into it quietly and left quietly, but her life was far from it. She touched MILLIONS of people and left the biggest imprint in everyone that knew her. She is no longer in pain and is now dancing away to all the music she loves,’ it read
‘I really wish this wasn’t our reality but unfortunately it is. We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses that worked for YEARS to keep her healthy. The family would now like to mourn this huge loss in private.’
Designer Michael Costello, who fashioned Williams’ birthday dresses back in 2019, also posted a statement.
‘My heart is broken. I received a message at 7pm last night, Adalia Rose Williams was called home to God. I am at a loss for words and cannot stop crying. Adalia has been so special to every single person that she met. She was an angel. Despite the cards she was dealt with, she had the most positive attitude and such big dreams of helping everyone around her,’ he wrote.
‘I love you so much Adalia… words cannot convey how much you’ve changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we’ve had together.’
Her Facebook page has more than 12 million followers, as well as 2.91 million subscribers on YouTube and 404,000 followers on Instagram.
Among the thousands of comments, one user wrote, ‘My heart breaks to hear this. I was lucky to have met her and to see how amazing she was. She touched so many people with her amazing energy. I’m so sorry for your family’s loss.’
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