unilad homepage
  • News
    • UK News
    • US News
    • World News
    • Crime
    • Health
    • Money
    • Sport
    • Travel
  • Film and TV
    • Netflix
  • Music
  • Tech
  • Features
  • Celebrity
  • Politics
  • Advertise
  • Terms
  • Privacy & Cookies
  • LADbible Group
  • LADbible
  • SPORTbible
  • GAMINGbible
  • Tyla
  • UNILAD Tech
  • FOODbible
  • License Our Content
  • About Us & Contact
  • Jobs
  • Latest
  • Archive
  • Topics A-Z
  • Authors
Facebook
Instagram
X
Threads
TikTok
YouTube
Submit Your Content
Céline Dion opens up about her decision to publicly share stiff-person syndrome diagnosis

Home> Celebrity> News

Published 10:28 11 Jun 2024 GMT+1

Céline Dion opens up about her decision to publicly share stiff-person syndrome diagnosis

Céline Dion has opened up about why the 'burden' of keeping her diagnosis a secret ended up 'too much'

Poppy Bilderbeck

Poppy Bilderbeck

google discoverFollow us on Google Discover
Featured Image Credit: Twitter/@TODAYshow

Topics: Celebrity, Health, Mental Health, Music

Poppy Bilderbeck
Poppy Bilderbeck

Poppy Bilderbeck is a freelance journalist with words in Daily Express, Cosmopolitan UK, LADbible, UNILAD and Tyla. She is a former Senior Journalist at LADbible Group. She graduated from The University of Manchester in 2021 with a First in English Literature and Drama, where alongside her studies she was Editor-in-Chief of The Tab Manchester. Poppy is most comfortable when chatting about all things mental health, is proving a drama degree is far from useless by watching and reviewing as many TV shows and films as possible.

Advert

Advert

Advert

Céline Dion has opened up about why she decided to go public with her diagnosis of stiff-person syndrome.

In 2022, the 'My Heart Will Go On' singer revealed she'd been diagnosed with an incurable autoimmune neurological disease called stiff-person syndrome (SPS) in an emotional video posted to Instagram.

Since divulging the news, the 56-year-old has continued to speak out about the condition and her journey with it, now opening up about why she went public with her diagnosis in the first place.

Advert

In her post to Instagram two years ago, Dion said she'd 'been dealing with problems with [her] health for a long time' and it had been 'really difficult' for her to 'face [her] challenges and to talk about everything that [she'd] been going through'.

She then revealed she'd been diagnosed with stiff-person syndrome - a condition which affects one in a million people and causes muscle stiffness and spasms which can worsen over time.

And the singer's since opened up about why it was so important to her to tell the world about her diagnosis.

Céline Dion explained why she decided to go public with her diagnosis (X/ @TODAYshow/ NBC)
Céline Dion explained why she decided to go public with her diagnosis (X/ @TODAYshow/ NBC)

In an interview appearance on NBC's TODAY show, Dion explained that she 'could not' hide the truth 'anymore'.

She continued: "What do you want me to say? I have what? We did not know what was going on. I should've stopped and taken the time to figure out and taken the time like it's not enough.

"My husband as well, was fighting for his own life. I had to raise my kids, I had to hide, I had to try and be a hero, feeling my body leaving me, holding onto my own dreams.

"And lying, for me, the burden was too much. Lying to people who got me where I am today - I could not do it anymore."

The interview follows after the singer took to her Instagram again earlier this year in March for SPS Awareness Day.

Dion said she couldn't hide the truth 'anymore' (Neilson Barnard/Getty Images for The Recording Academy)
Dion said she couldn't hide the truth 'anymore' (Neilson Barnard/Getty Images for The Recording Academy)

She wrote: "Today the world recognizes International SPS Awareness Day.

"As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS). Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible."

She continued: "I am deeply grateful for the love and support from my kids, family, team and all of you!

"I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it! We can do it!"

If you or someone you know is struggling or in crisis, help is available through Mental Health America. Call or text 988 to reach a 24-hour crisis center or you can webchat at 988lifeline.org. You can also reach the Crisis Text Line by texting MHA to 741741.

  • Alabama woman opens up on wedding night car accident that led to life changing diagnosis
  • Pete Davidson opens up about 'brutal' reason he got sober
  • Pete Davidson opens up about losing his dad so young
  • Reese Witherspoon opens up about abusive relationship that forced her to ‘rewire her brain’

Choose your content:

an hour ago
7 hours ago
9 hours ago
11 hours ago
  • YouTube/Coachella
    an hour ago

    Crazy theory emerges about Justin Bieber's headline show at Coachella weekend two

    Coachella is well underway, and now a theory about Justin Bieber has emerged...

    Celebrity
  • Disney/Eric McCandless via Getty Images
    7 hours ago

    Model in Katy Perry's 'Teenage Dream' made sexual misconduct claim before Ruby Rose

    Model Josh Kloss said he did not want to help Perry's 'bs image another second' at the time of the allegations

    Celebrity
  • Esquire/YouTube
    9 hours ago

    Bryan Cranston makes brutal comment about Shia LaBeouf as he shares message to star

    The Malcolm in the Middle star gave some advice to Shia LaBeouf following his arrest

    Celebrity
  • Frazer Harrison/Getty Images
    11 hours ago

    Christina Applegate's rep responds to claims she's been hospitalized

    The actress is believed to have been taken to a Los Angeles-based hospital

    Celebrity