• News
  • Film and TV
  • Music
  • Tech
  • Features
  • Celebrity
  • Politics
  • Weird
  • Community
  • Advertise
  • Terms
  • Privacy & Cookies
  • LADbible Group
  • LADbible
  • SPORTbible
  • GAMINGbible
  • Tyla
  • UNILAD Tech
  • FOODbible
  • License Our Content
  • About Us & Contact
  • Jobs
  • Latest
  • Topics A-Z
  • Authors
Facebook
Instagram
X
Threads
TikTok
YouTube
Submit Your Content
Céline Dion opens up about her decision to publicly share stiff-person syndrome diagnosis

Home> Celebrity> News

Published 10:28 11 Jun 2024 GMT+1

Céline Dion opens up about her decision to publicly share stiff-person syndrome diagnosis

Céline Dion has opened up about why the 'burden' of keeping her diagnosis a secret ended up 'too much'

Poppy Bilderbeck

Poppy Bilderbeck

google discoverFollow us on Google Discover

Céline Dion has opened up about why she decided to go public with her diagnosis of stiff-person syndrome.

In 2022, the 'My Heart Will Go On' singer revealed she'd been diagnosed with an incurable autoimmune neurological disease called stiff-person syndrome (SPS) in an emotional video posted to Instagram.

Since divulging the news, the 56-year-old has continued to speak out about the condition and her journey with it, now opening up about why she went public with her diagnosis in the first place.

Advert

In her post to Instagram two years ago, Dion said she'd 'been dealing with problems with [her] health for a long time' and it had been 'really difficult' for her to 'face [her] challenges and to talk about everything that [she'd] been going through'.

She then revealed she'd been diagnosed with stiff-person syndrome - a condition which affects one in a million people and causes muscle stiffness and spasms which can worsen over time.

And the singer's since opened up about why it was so important to her to tell the world about her diagnosis.

Céline Dion explained why she decided to go public with her diagnosis (X/ @TODAYshow/ NBC)
Céline Dion explained why she decided to go public with her diagnosis (X/ @TODAYshow/ NBC)

In an interview appearance on NBC's TODAY show, Dion explained that she 'could not' hide the truth 'anymore'.

She continued: "What do you want me to say? I have what? We did not know what was going on. I should've stopped and taken the time to figure out and taken the time like it's not enough.

"My husband as well, was fighting for his own life. I had to raise my kids, I had to hide, I had to try and be a hero, feeling my body leaving me, holding onto my own dreams.

"And lying, for me, the burden was too much. Lying to people who got me where I am today - I could not do it anymore."

The interview follows after the singer took to her Instagram again earlier this year in March for SPS Awareness Day.

Dion said she couldn't hide the truth 'anymore' (Neilson Barnard/Getty Images for The Recording Academy)
Dion said she couldn't hide the truth 'anymore' (Neilson Barnard/Getty Images for The Recording Academy)

She wrote: "Today the world recognizes International SPS Awareness Day.

"As many of you know, in the fall of 2022, I was diagnosed with Stiff Person Syndrome (SPS). Trying to overcome this autoimmune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible."

She continued: "I am deeply grateful for the love and support from my kids, family, team and all of you!

"I want to send my encouragement and support to all those around the world that have been affected by SPS. I want you to know you can do it! We can do it!"

If you or someone you know is struggling or in crisis, help is available through Mental Health America. Call or text 988 to reach a 24-hour crisis center or you can webchat at 988lifeline.org. You can also reach the Crisis Text Line by texting MHA to 741741.

Featured Image Credit: Twitter/@TODAYshow

Topics: Celebrity, Health, Mental Health, Music

Poppy Bilderbeck
Poppy Bilderbeck

Poppy Bilderbeck is a freelance journalist with words in Daily Express, Cosmopolitan UK, LADbible, UNILAD and Tyla. She is a former Senior Journalist at LADbible Group. She graduated from The University of Manchester in 2021 with a First in English Literature and Drama, where alongside her studies she was Editor-in-Chief of The Tab Manchester. Poppy is most comfortable when chatting about all things mental health, is proving a drama degree is far from useless by watching and reviewing as many TV shows and films as possible.

Advert

Advert

Advert

Choose your content:

2 hours ago
3 hours ago
4 hours ago
  • BG002/Bauer-Griffin/GC Images
    2 hours ago

    Mickey Rourke breaks silence after officially being evicted from LA home and declining $100,000 GoFundMe donations

    The 73-year-old actor is speaking about his home after calling out the GoFundMe.

    Celebrity
  • Photo by Lester Cohen/Getty Images for The Recording Academy
    3 hours ago

    Kelly Clarkson exposes the truth behind American Idol winnings

    Winning American Idol's $1 million cash prize did not make Kelly Clarkson into a millionaire

    Celebrity
  • YouTube/Las Culturistas
    3 hours ago

    Nicole Kidman shares her dealbreaker when filming sex scenes that one actor almost broke

    Kidman revealed just why this dealbreaker was so important to her

    Celebrity
  • Photo by Sergione Infuso/Corbis via Getty Images
    4 hours ago

    Katy Perry criticized after responding to fan's financial struggle with 'out-of-touch' message

    Fans were stunned to see Katy Perry offer no help to someone attending her tour who was in real difficulty

    Celebrity
  • Selena Gomez urges people not to give up as she opens up on impact of misdiagnosis
  • Reese Witherspoon opens up about abusive relationship that forced her to ‘rewire her brain’
  • Christina Applegate opens up on multiple sclerosis diagnosis reality as she reveals she's mostly confined to her bed
  • Eminem’s daughter Hailie Jade opens up about the 'struggle her dad faced’ as she reflects on her childhood