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Painful footage of Céline Dion shaking uncontrollably in old video is leaving fans deeply concerned

Home> Celebrity> News

Published 17:22 4 Feb 2026 GMT

Painful footage of Céline Dion shaking uncontrollably in old video is leaving fans deeply concerned

The footage was from her documentary titled 'I Am: Celine Dion'

Niamh Shackleton

Niamh Shackleton

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Featured Image Credit: Prime Video

Topics: Amazon Prime, Celebrity, Documentaries, Health

Niamh Shackleton
Niamh Shackleton

Niamh Shackleton is an experienced journalist for UNILAD, specialising in topics including mental health and showbiz, as well as anything Henry Cavill and cat related. She has previously worked for OK! Magazine, Caters and Kennedy.

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@niamhshackleton

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Footage of Céline Dion in the middle of seizure has resurfaced online and has sparked fresh concerns for for the Canadian singer.

In 2024 the 'My Heart Will Go On' hitmaker released her documentary, I Am: Celine Dion, on Prime Video.

The moving film's synopsis reads: "Directed by Academy Award nominee Irene Taylor, I Am: Celine Dion gives us a raw and honest behind-the-scenes look at the iconic superstar’s struggle with a life-altering illness."

Two years prior to its release, Dion revealed that she'd be diagnosed with Stiff Person Syndrome (SPS), a rare condition that only affects around one to two people per million.

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Per Cleveland Clinic, SPS causes a person to experience muscle stiffness and painful muscle spasms.

While there's no cure, there are treatments available to help people manage the debilitating side affects of the condition.

Céline Dion suffers from 'Stiff Person Syndrome' (Kristina Bumphrey/Variety via Getty Images)
Céline Dion suffers from 'Stiff Person Syndrome' (Kristina Bumphrey/Variety via Getty Images)

In her documentary, Dion was very candid about her illness and even allowed filmmakers to document the moment she had a 'crisis' seizure.

The heartbreaking video showed the 57-year-old lying down and crying as her body shook uncontrollably. A nurse was there comforting her through it all.

A video of this particular moment has been shared on Twitter where people have questioned if the moment should have been caught on camera.

One person said: "I don’t think this should have been documented, what’s the intention behind it?"

Another added: "Why publish someone's vulnerable and confidential moment like this..... this is invading her privacy."

Others on social media described the video as 'heartbreaking'.

Warning: Some viewers may find the following clip distressing:

Those who have expressed their worries though were quickly reminded that Dion consented to the clip being part of her documentary and that she's doing it to raise awareness about her condition.

"She controlled the film, and did it for all out there who may have this horrific, difficult to diagnose, life altering disease," one wrote.

"I recommend that everyone watch it. It’s difficult to sit through, but it is raw and honest and she deserves respect. It’s a miracle she can sing again," they added.

A second commented: "Awareness is the intention. It should be published and people need to be aware of such diseases."

A different person replied to a separate Twitter user questioning why this video would be shared: "She wants to raise awareness. Let’s be honest, many of us had never heard of this before. She’s brave for doing this. It’s not easy but important."

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