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Man reveals harsh reality of living with rare disease that causes broken bones when he sneezes

Home> News> Health

Updated 16:02 13 May 2024 GMT+1Published 16:03 13 May 2024 GMT+1

Man reveals harsh reality of living with rare disease that causes broken bones when he sneezes

Joe Hall took to Reddit to share details of his condition in the hope of raising awareness

Emily Brown

Emily Brown

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Featured Image Credit: imgur / Getty stock image

Topics: Health, Life, Reddit

Emily Brown
Emily Brown

Emily Brown is UNILAD Editorial Lead at LADbible Group. She first began delivering news when she was just 11 years old - with a paper route - before graduating with a BA Hons in English Language in the Media from Lancaster University. Emily joined UNILAD in 2018 to cover breaking news, trending stories and longer form features. She went on to become Community Desk Lead, commissioning and writing human interest stories from across the globe, before moving to the role of Editorial Lead. Emily now works alongside the UNILAD Editor to ensure the page delivers accurate, interesting and high quality content.

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A man who lives with a rare disease affecting his bones has opened up about his life and how something as simple as sneezing can result in an injury.

Joe Hall, from the US, took to Reddit to share his unusual experiences after being diagnosed with the condition which is inherited from birth.

Joe's bones are softer than normal. (Getty Stock Photo)
Joe's bones are softer than normal. (Getty Stock Photo)

Called Osteogenesis imperfecta (OI), the condition is also known as 'brittle bone disease' and results in soft bones which can easily fracture, as well as bones that are not formed as normal.

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In his post, Joe explained that he has 'always tried to live [his] life as fully as possible', but there are some aspects of his condition that have caused issue over the years.

There are eight different types of OI, each varying in severity, of which Joe has type three - the most severe type in babies who don’t die as newborns, according to Johns Hopkins Medicine.

Joe Hall has had the condition since birth. (Imgur/Joe Hall)
Joe Hall has had the condition since birth. (Imgur/Joe Hall)

As a result, Joe has never walked and stopped growing at around three feet tall. He uses an electric wheelchair to get around, is partially deaf and has low respiratory functions.

Over the course of his life, Joe has estimated that he's had around 250 broken bones - but it's such a common occurrence for him that he's admitted he doesn't 'really keep count'.

In an effort to raise awareness for the condition, Joe shared his post as an 'ask me anything', prompting Reddit users to share questions about his experience.

One user asked Joe what kind of 'pressure' would be needed on his body to result in a break, to which Joe revealed that in the past he has 'fractured many ribs just by coughing or sneezing'.

Something as simple as sneezing can result in an injury. (Getty Stock Photo)
Something as simple as sneezing can result in an injury. (Getty Stock Photo)

However, he noted that his bones are less brittle now than when he was younger, so it now 'takes a lot more than that'.

Joe also described 'coughing or sneezing' as the 'most innocuous thing' that's caused him to break a bone.

However, while his condition has meant he's had a lot of broken bones in his time, Joe revealed that a 'very smart doctor' told his parents to treat him as 'normal as possible'.


"Act as if I wasn't special and have the same expectations from me that they had for my sisters. I think that was the best possible advice they could have gotten," Joe said.

"As a result I now live independently and have a successful career."

As well as raising awareness for OI, Joe is currently working to raise money for the Osteogenesis Imperfecta Foundation's biennial national conference, which you can donate towards here.

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